Our Leadership

Guided by experience.
Driven by purpose.
United for the Fragile X community.

Fragile X Canada is guided by lived experience, professional expertise, strong governance, and a shared commitment to building a better future for individuals and families across the full Fragile X community.

Together, our leadership strengthens Fragile X expertise in Canada, advances research and care, builds meaningful partnerships, and ensures individuals and families are supported at every stage of life.

EXECUTIVE LEADERSHIP

Karen Kelm, MSc
President & Chief Executive Officer

Karen leads the Foundation's national strategy, partnerships, programs, and day-to-day operations.

Learn more about Karen →

BOARD LEADERSHIP

Scott Bolton, CPA, CA, ICD 
Chair, Board of Directors

Scott provides governance leadership and strategic guidance as the Foundation enters its next stage of National growth and development.

Learn more about Scott →

Our Board: Leading the Way

  • Scott Bolton

    Board Chair

     Scott Bolton, CPA, CA, ICD is the former President and Chief Executive Officer of UFA, one of Canada’s largest agricultural cooperatives. Prior to UFA, Scott was a Partner and the National Energy Leader at PwC. A University of Alberta alumnus, Scott’s industry knowledge covers the agriculture, energy, and mining sectors. He has experience working in Canada, Europe, and the United States. 

    Scott is the current Chair of the Board of Directors of the Business Council of Alberta. He is also on the board of Calgary Quest School, a private school focused on children and young adults with developmental disabilities and FSHD Canada Foundation which is dedicated to finding a cure for a form of muscular dystrophy. Scott previously chaired the Agriculture & Forestry Table for the Premier of Alberta’s Economic Recovery Council and was the agriculture representative on the Business Council of Alberta’s Define the Decade Committee. 

  • Carrie Lakatos

    VICE PRESIDENT

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  • Todd Befus

    TREASURER

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  • Theresa Bolton

    SECRETARY

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  • June Clark

    DIRECTOR

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  • Melissa Gillett

    DIRECTOR

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Values

Building Expertise and Advancing Knowledge

We strive to build and share knowledge, becoming the leading source of expertise in Fragile X Syndrome. By fostering education and supporting research, we empower professionals, families, and clinicians alike with the information needed to thrive.

Innovation for a Brighter Future

We are committed to driving innovation in Fragile X research, care, and support, continuously seeking new solutions to improve the quality of life for individuals and families.

Empowering Families and Celebrating Strengths

We are dedicated to empowering families by celebrating their unique strengths and providing the support needed to confidently navigate their Fragile X journey.

Empowering Through Education and Advocacy

We provide comprehensive educational resources and
proactive advocacy to empower families, professionals,
and communities with the knowledge and tools they need to thrive.

Creating Safe and Inclusive Spaces

We are committed to creating safe and inclusive spaces where open conversations and knowledge sharing lead to greater understanding, support, and empowerment.

Strength in Community and Collaboration

We believe in the strength of community and collaboration, working together to advance understanding, foster support, and create lasting change for the Fragile X community.