FragileX
Canada
CONNECTION STARTS HERE
There’s a place
for you here.
Bringing individuals and families, clinicians, researchers, and community partners together across Canada.
Whether Fragile X is part of your life, your work, or something you want to understand, we welcome you.
Connection. Care. Possibility
Our community, together.
FIND YOUR WAY
What brings you here?
Fragile X is
part
of my life
Information, everyday resources, and people who understand.
I support
people
with Fragile X
Resources for clinicians, educators, and care providers.
I am involved
in Fragile X
research
Connect, exchange knowledge, and work with the community.
I want to
make
a difference
Give, volunteer, fundraise, or explore
a partnership.
A PLACE TO BEGIN
New to Fragile X?
A diagnosis or test result can bring many questions. You don’t need to understand everything at once.
Start with the basics
Ask us a question
Bringing Fragile X into your work?
Whether you’re a clinician, researcher, educator, or community professional, your expertise has a place here. Find resources, exchange knowledge, and connect with others working to strengthen Fragile X understanding, care, and support.
Explore care and research
Connect with us
YOU ARE WELCOME
Find people
who understand.
Connect with individuals and families across Canada through our online community gatherings.
Come as you are.
Share, listen, or simply be present. You don’t need to prepare anything or know what to say.
There’s room for your experience here.
CARE, KNOWLEDGE & DISCOVERY
Help shape what comes next.
Lived experience, clinical expertise, and research each contribute to a stronger future.
FragileX Connect
Building a clearer picture of Fragile X in Canada through our national research registry.
Connecting Fragile X
Bringing people together to identify unanswered questions that matter in research, care, and community.
Research & knowledge
Connect with research opportunities and the people advancing understanding.
MEET YOUR FOUNDATION
A national foundation.
A shared commitment.
Building Expertise ~ Inspiring Hope
We champion the Fragile X community through collaboration, research advancement, and advocacy for comprehensive care and support.
Our work brings lived experience and professional expertise together across the lifespan.
Stay connected.
Community gatherings, resources, research opportunities, and news from Fragile X Canada.
MAKE A DIFFERENCE
Help build a more
connected future.
Your support helps bring people together, share knowledge, advance research, and advocate for care across the lifespan.