Join the movement
Fragile X Canada Charity Run
Our goal? To raise $136K!
$1 for every Canadian impacted by Fragile X
Because a bold new future for Fragile X Canada demands bold action!
World Fragile X Day 🌍💖
Why World Fragile X Day Matters
Every year on July 22, the global Fragile X community comes together to raise awareness, celebrate strengths, and inspire change for individuals and families living with Fragile X Syndrome. As one of the most common inherited causes of intellectual disability and autism, Fragile X remains underrecognized, making awareness efforts like this essential.
Landmarks across Canada and the world light up to spark conversations, increase understanding, and drive action toward better support, research, and advocacy.
How You Can Get Involved
💡 Illuminate a Landmark – Help us light up buildings, bridges, and monuments across Canada! Know a landmark that could participate? Reach out to us!
📢 Spread the Word – Share posts, stories, and facts about Fragile X on social media using #WorldFragileXDay and #FragileXAwareness.
👕 Wear Pink! – Show your support by wearing colours that represent the Fragile X community and start conversations with those around you.
💖 Make a Difference – Donate, volunteer, or join us in our mission to champion families and advance research in Fragile X Syndrome.
👉 Want to be part of World Fragile X Day? Contact us to learn how you can help light up Canada and make an impact!
Together, we shine brighter! 🩷💙💚🧡
Check out : https://worldfragilexday.com/ for a map of illuminations around the world
Building Community
Advancing Science
SAVE THE DATE
Toronto, November 2025
This groundbreaking summit will bring together individuals, families, researchers, and advocates to co-author the future of Fragile X, not just as witnesses, but as leaders of change.
Updated Event: Fragile X Evening of Connection and Conversation
Toronto: May 20, 2025
We’ve made the thoughtful decision to postpone the symposium prior to the CAN Conference to 2026
to ensure it can be as meaningful and inclusive as possible.
That said, we’re still excited to connect in person!
We’re hosting a Fragile X Evening on Tuesday, May 20, 2025, starting at 7:00 PM. This relaxed, evening social and networking gathering will bring together researchers, clinicians, advocates, and community members to foster connection, spark ideas, and build momentum toward future collaboration.