FRAGILEX
CONNECT
A Canadian research registry
Approximately 136,000 Canadians are impacted by the Fragile X mutation.
Every number represents a person, a family, and a story. FragileX Connect is Canada’s national registry designed to bring this valuable information together, to help us better understand who is impacted, where they are, and what supports they need. By sharing a few details, you are helping improve care, advance research, and shape policies that matter.
FragileX Connect brings together families, researchers, and clinicians to build a clearer picture of Fragile X in Canada.
With Dr. David Hampson and the University of Toronto, we’re collecting information that guides research, improves care, and strengthens supports across the country.
