2025 CANADIAN FRAGILE X CONFERENCE

Connecting Fragile X

Elevating What Matters in

Research, Care & Community

November 7–8, 2025 | Toronto, Ontario

Holland Bloorview Kids Rehabilitation Hospital
Canada’s first national Fragile X conference

FAMILIES & ADVOCATES I RESEARCHERS I CLINICIANS I INDUSTRY PARTNERS I POLICY LEADERS

We hope you will join us!

By bringing together lived experience, clinical expertise, and scientific innovation, this national initiative will not only define what matters most to the Fragile X community, but builds a stronger foundation that invests in a more inclusive system of care and research in Canada.

register now

Unite the Community to
Spark Collective Progress
Bring together individuals with lived experience, clinicians, researchers, industry leaders, and policymakers to foster shared understanding, collaboration, and momentum for change across all aspects of Fragile X and related conditions.

Objectives:

Translate Research
into Meaningful Impact
Bridge the gap between scientific discovery and real-world care by highlighting innovations in basic science, clinical trials, and implementation strategies that improve quality of life and inform better policy and practice.

Empower Every Voice
to Drive the Future
Elevate the perspectives of families,
self-advocates, and underrepresented groups, including carriers, by creating inclusive, safe spaces for storytelling, learning, and priority setting, with the launch of initiatives like the national registry and James Lind Alliance Priority Setting Partnership.