2025 CANADIAN FRAGILE X CONFERENCE

Connecting Fragile X

Elevating What Matters in Research, Care & Community

FAMILIES & ADVOCATES I RESEARCHERS I CLINICIANS I INDUSTRY PARTNERS I POLICY LEADERS

A Different Kind of Conference ~ Where Everyone Has a Seat at the Table

This isn't just another scientific meeting or family workshop, it's a full community experience that brings families, researchers, clinicians, industry partners, advocates, and the entire community together to drive real change in Fragile X.

Keynote Speakers

Shaping Vision, Inspiring Possibility

Across the Fragile X community, Keith McArthur and Dr. Peter Rosenbaum have inspired many of us to reimagine what is possible, in individuals, in care, and in science. Through their leadership, lived experience, and commitment to change, they offer powerful reminders that progress happens when we listen deeply, work collaboratively, and see the whole picture. We’re honoured to have them open each day of the conference with keynote talks designed to spark conversation, reflection, and renewed purpose.

Keith McArthur
GRIN1 Dad | Executive Director, CureGRIN Foundation

Keith’s journey began as a father searching for answers and grew into a global advocacy movement. As the host of the award-winning podcast Unlocking Bryson’s Brain and Executive Director of the CureGRIN Foundation, Keith has worked tirelessly to build research momentum and community in the GRIN disorder space. His experience navigating diagnosis, science, and systems gives him a unique lens into what it takes to drive change and the power of hope behind it all.

Dr. Peter Rosenbaum
Co-founder, CanChild | Officer of the Order of Canada

A pioneer in childhood disability research, Dr. Rosenbaum has helped generations of clinicians, researchers, and families rethink care through a strengths-based, family-centred lens. His work on theInternational Classification of Functioning framework and “F-words” of childhood disability: Function, Family, Fitness, Fun, Friends, and Future, has become foundational in Canada and around the world. As a recent recipient of the Order of Canada, his impact continues to grow, and we are honoured to have him close the conference by reminding us what truly matters across the lifespan.