Connecting Fragile X

This registration tier is designed for:

• Individuals with Fragile X Syndrome or a related condition (e.g., FXTAS, FXPOI)

• Parents, siblings, and extended family members caring for or connected to someone with Fragile X

• Carriers of the Fragile X premutation who want to connect, learn, and engage

• Family advocates and community champions

What's Included:

• Access to all sessions over two full days

• Family-focused and inclusive programming

• Breakfast, lunch, and refreshment breaks each day

• Community networking opportunities and fireside chats

• Optional participation in the registry launch and engagement activities

• A welcoming space to share your voice, insights, and lived experience

We believe families and self-advocates are experts in their own right, this conference is built with you and for you.

This registration tier is designed for:

• Undergraduate, graduate, or medical students

• Postdoctoral fellows or residents

• Early-career researchers or trainees in healthcare, education, genetics, or related fields

• Individuals with an interest in neurodevelopmental disorders, rare diseases, or community-based research

What’s Included:

• Full access to all conference sessions over two days

• Opportunities to learn directly from families, clinicians, researchers, and advocates

• Breakfast, lunch, and refreshment breaks each day

• Networking opportunities with leaders across sectors

• Access to mentorship conversations, student engagement opportunities, and future collaboration pathways

Come ready to learn, ask questions, and shape the future of Fragile X research and care.

This registration tier is ideal for:

• Physicians, specialists, nurses, therapists, psychologists, and allied health professionals

• Clinical researchers, basic scientists, and translational researchers

• Academic faculty, research coordinators, and professionals working in healthcare, education, or neurodevelopmental science

What’s Included:

• Full access to all conference sessions, including scientific panels, family-led insights, and community discussions

• Opportunities to engage in cross-disciplinary dialogue and explore collaborative research opportunities

• Breakfast, lunch, and coffee breaks on both days

• Access to workshops, implementation-focused sessions, and poster presentations

• Certificate of attendance and eligibility for continuing professional development credits (where applicable)

• Participation in a national movement to improve Fragile X understanding, care, and research impact

Join us to connect evidence with lived experience, shape future care models, and drive meaningful innovation in Fragile X and associated disorders.

This registration tier is designed for:

• Speech-language pathologists, occupational therapists, physiotherapists, behavior therapists, social workers, genetic counsellors, and other allied health professionals

• Educators, education assistants, support workers, and early intervention specialists

• Community service providers and anyone supporting individuals with Fragile X or associated neurodevelopmental conditions

What’s Included:

• Full access to all conference sessions including clinical, research, and lived experience panels

• Practical tools, strategies, and real-world insights to apply in your everyday work

• Opportunities to connect with families, researchers, and other professionals

• Breakfast, lunch, and coffee breaks on both days

• Workshops focused on care models, implementation strategies, and collaborative approaches

• Access to new guidelines, research updates, and resource-sharing

• A space to share your voice and strengthen community partnerships

Come be part of a collaborative community focused on understanding, supporting, and advancing care for individuals with Fragile X and related conditions.

This registration tier is ideal for representatives from:

• Biotech and pharmaceutical companies

• Health tech and diagnostics

• Research institutes and academic-industry collaborations

• Foundations, funding bodies, and non-profit organizations

• Advocacy and policy groups

What’s Included:

• Full access to all sessions, including plenaries, workshops, and panels that integrate scientific, clinical, and community perspectives

• Networking opportunities with families, clinicians, researchers, and policymakers

• Insight into real-world needs and lived experience to inform product development, research priorities, and strategic initiatives

• Opportunities to learn about the latest in Fragile X science, care models, and policy efforts

• Breakfast, lunch, and coffee breaks on both days

• Recognition as a contributor to a collaborative ecosystem advancing solutions in Fragile X and related conditions

Be part of a movement shaping the future of care, research, and innovation in partnership with the community it serves.

Can’t join us in person? Be part of the conversation from wherever you are.

What’s Included:

• Live access to keynote presentations, plenary sessions, and selected workshops

• Virtual engagement opportunities including Q&A, chat discussions, and live polls

• Access to a curated digital conference hub with session replays and exclusive resources

• Opportunities to connect with other virtual attendees and stay informed about Fragile X initiatives in Canada and beyond

• Option to participate in future engagement and advocacy opportunities through Fragile X Canada

Whether you’re a family member, student, clinician, researcher, or advocate virtual participation ensures your voice is included in this national conversation.