Whatever you're building, we're here to help you take the first step with confidence.
Community Input Needed
Connecting Fragile X
National Priority Setting Initiative
Listening to the community and identifying the questions that matter most in research, care, support, and quality of life.
Learn more →Now Enrolling
Fragile X Connect
National Registry
Helping build a clearer picture of the Fragile X and FMR1-associated community across Canada.
Request your link →In Progress
GeneXchange
Linking Genetic Discovery to Real-World Impact
Exploring how genetic diagnosis information can be better communicated, understood, and translated into care.
Learn more →Ongoing
National Gatherings
Conference & Community Events
Bringing families, researchers, clinicians, partners, and community leaders together to shape what comes next.
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