Canadian Fragile X Conference

Connecting Fragile X: Prioritizing What Matters in Research, Care & Community

November 7-8, 2025 | Toronto, Canada
Hosted by Fragile X Canada | CME Credits Available

We are thrilled to announce Connecting Fragile X: Prioritizing What Matters in Research, Care & Community—a national conference designed to bring together families, researchers, clinicians, and advocates from across Canada and beyond.

Set in Toronto in at Holland Bloorview this first-of-its-kind gathering will spark new connections, foster cross-disciplinary collaboration, and shine a spotlight on what truly matters to the Fragile X community.

Purpose

This conference aims to elevate Fragile X awareness and action across Canada’s vast landscape—bridging research and care, integrating lived experience into the heart of scientific conversations, and identifying shared priorities to guide future efforts.

We’ll also be launching a James Lind Alliance (JLA) Priority Setting Partnership, ensuring that families and professionals together define the top research questions that need answers.

Conference Objectives

• Elevate knowledge & awareness through presentations, panels, and real-world storytelling

• Build capacity for caregiving, clinical care, and advocacy with hands-on workshops

• Foster collaboration across researchers, healthcare providers, and families

• Empower family voices to influence research, care, and policy priorities

• Translate research into action with practical strategies and accessible tools

• Ensure inclusion and lasting impact through accessible design and post-event engagement

Earn CME Credits

Healthcare professionals will have the opportunity to earn Continuing Medical Education (CME) credits by participating in accredited sessions. This is a valuable opportunity to deepen your expertise in Fragile X care and patient-centered approaches.

Join Us

Whether you are a researcher exploring new frontiers, a healthcare provider seeking better tools for care, or a family member living the Fragile X journey—you belong here.

Together, we will shape the future of Fragile X in Canada.

📬 Stay tuned for registration details, speaker announcements, and program highlights—coming soon.