Your Voice

Your Vision

Your Future

Community Insight, Representation, Collaboration, Leadership & Engagement

At FragileX Canada, the CIRCLE Network brings together individuals, families, and community members with lived experience to help guide what comes next in research, care, and community support.

This isn’t just about being heard. It’s about being part of something bigger. A place where stories, insights, and real-life experiences come together to shape a stronger, more inclusive future.

Whether you’ve just begun your journey or have walked this path for years, your voice has a place here.

Gathering Voices. Building Connections.

Help shape what matters most. Current opportunities:

  • We’re looking for people who:

    • Live with Fragile X or support someone who does.

    • Are interested in helping design opportunities that reflect real-world needs.

    • Care about building community and connection.

    • Believe in the power of shared stories and strengths.

    Whether you're new to this space or a long-time advocate
    YOUR VOICE MATTERS

    CANADIAN REGISTRY ADVISORY

    • 1 hour virtual focus group + short follow up session

    • Share what really matters to families around data collection and engagement

    EXPRESS YOUR INTEREST HERE

  • We’re looking for people who:

    • Live with Fragile X or support someone who does.

    • Are interested in helping design opportunities that reflect real-world needs.

    • Care about building community and connection.

    • Believe in the power of shared stories and strengths.

    Whether you're new to this space or a long-time advocate
    YOUR VOICE MATTERS

    CANADIAN CONFERENCE ADVISORY

    • 1-hour virtual brainstorming session + a short follow-up

    • Suggest topics, speakers, or ways to make it more inclusive

    • Make sure the conference reflects real-life experiences

    EXPRESS YOUR INTEREST HERE