Audrie and Sydney came together with a shared purpose, to educate and inspire. Their individual journeys, one as a devoted sibling and the other as a passionate self-advocate, led them to the Alberta Children’s Hospital, where they shared their stories with medical trainees (residents). Through their lived experiences, they provided invaluable insight into the realities of rare disease, helping to shape a more compassionate and informed future in healthcare. Their voices are powerful reminders that behind every diagnosis is a person, a family, and a story worth telling. We look forward to sharing their full stories here, continuing to inspire and strengthen the community around us.

Audrie wants the world to know that Seth changes the lives of those around him for the better, and she is here to make sure his story is heard.

Sydney wants the world to recognize the challenges but also take the time listen to people and find ways to help them succeed.