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Fragilex Logo
Fragilex Canada Foundation

Fragile X Research Foundation of Canada’s Mission: Transforming the lives of individuals with Fragile X, their families, and the networks of professionals who serve them. We are a volunteer-based organization that facilitates community education, awareness and advocacy, as well as basic and clinical research into treatments of Fragile X and it’s related conditions.

Vision: A world where Fragile X is recognized and supported in all aspects of health and social care, with effective and accessible treatments.

Let’s give Fragile X a voice.

Latest Fragile X new: more info on building our community connections https://www.fragilexcanada.ca/1033-2/

 

 

Call for Board of Director Nominations.

As part of an ongoing process of renewal, and with an expanded mandate, we are looking for a few new Board members to help direct the Foundation’s future advancement. We are seeking individuals with competencies in fundraising, community engagement or communications. Nominations should be forwarded to: nominations@fragilexcanada.ca  We are especially encouraging someone to join our Board who can maintain and update our website (WordPress).  We are a volunteer-based organization that facilitates community education, awareness and advocacy, as well as basic and clinical research into treatments of Fragile X and its related conditions. Our vision is of a world where Fragile X is recognized and supported in all aspects of health and social care, with effective and accessible treatments.

Research grants

CFXF has partnered with FRAXA to provide funds for both clinical trials and basic research. Dates for the 2022 competition will be announced in the spring. For more information contact medical@fragilexcanada.ca

Fragile-X Webinars

Watch this space for information on fragile-x related webinars.

FXRFC Annual Fun Day Postponed

The date for the FXFC Annual Fun Day in Toronto will be announced when COVID restrictions are lifted for these types of event.

Metformin Trial in Canada and the USA.

For more information go to http://metforminfxs.com/about-the-trial.html  

Ontario Health Carrier Screening – Fragile X Call for Participation – Carrier Screening

We want to hear from you!

What is the opportunity? Ontario Health is currently reviewing a Carrier Screening program for Fragile X and other genetic conditions.
Carrier screening for some genetic conditions is available and publicly funded for some people (e.g., based on family history, ethnicity), but is currently not widely offered to everyone. A key part of this review is to make sure the lived-experience of patients is considered.More Information: https://www.fragilexcanada.ca/call-for-participants-ontario/

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