National Fragile-x Foundation (US)
The goal is to provide you with the best educational materials, including our evidence-based Treatment Recommendations and our succinct Info Series, so you have the best information at your fingertips. Read on to learn about the latest. Assessing Individuals with Fragile X Syndrome
|Our latest in the Info Series — Introduction to Assessing Individuals with FXS — is a guide to the importance of assessment of individuals with delayed development, including the aspects of assessment, strategies, and the testing process. For a more comprehensive look at assessments, visit our Treatment Recommendations page on assessing children with Fragile X syndrome. Treatment Recommendations are published as consensus of the Fragile X Clinics & Research Consortium (FXCRC).
|Info Series Library of Resources The Fragile X Info Series are designed to be easily printable at home or work, so you can distribute them as needed — to teachers, classmates, neighbors, or friends, or if work at a clinic you might want to share information with new families. Our goal is that these flyers are informative and shareable. Our Info Series library currently contains 15 topics (with more on the way!) Here are just a few in case you missed them.
|Testing A comprehensive guide to testing and understanding the results.
|In-person Visit to a Fragile X Clinic A comprehensive guide and checklists on how to prepare, what to expect, and questions to ask.
|FXS for Kids of All Ages A guide for kids who don’t have Fragile X syndrome, to help them understand what it is and how it affects people.
|FXTAS Information on Fragile X-associated tremor/ataxia syndrome, including statistics, onset, progression, diagnosis, interventions and treatments.
|Fragile X 101 A comprehensive guide that helps answer questions about common physical, cognitive, and behavioral issues. You’ll also learn how Fragile X is inherited, the various treatment options available, how females are affected vs. males, and the support you can receive from the NFXF.