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Fragilex Canada Foundation

Carrier Screening – Fragile X Call for Participation – Carrier Screening

We want to hear from you!

What is the opportunity? Ontario Health is currently reviewing a Carrier Screening program for Fragile X and other genetic conditions.
Carrier screening for some genetic conditions is available and publicly funded for some people (e.g., based on family history, ethnicity), but is currently not widely offered to everyone. A key part of this review is to make sure the lived-experience of patients is considered.

How you can help:
We are looking to speak to:
People who are familiar with carrier screening and may have been tested as a carrier for genetic conditions
People who have experience with Fragile X syndrome, or family members
This review will result in a recommendation to the Ministry of Health about the potential public funding of this screening program. The views, values, and experiences of patients are of vital importance to this review.

What do we need from you?
Time Commitment: 20 – 40 minutes interview
Location: By phone
If you are interested in participating, please contact David Wells, Patient and Public Partnering, David.Wells@ontariohealth.ca or 1 647-952-9927.
Deadline for applications: August 15th, 2022
Thank you in advance for your time!

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