Board of directors

President 
Karen Kelm MSc, BA

For over 15 years, Karen Kelm has been a significant leader in advocacy, support, and education for families and health care providers related to Fragile X syndrome in Canada. Based in Calgary, Alberta, Karen continues to build communities and networks between parents and health professionals while raising three children diagnosed with Fragile X syndrome. 

Vice President
Carrie Lakatos

Carrie became a new board member in 2021 and is the parent of a son with Fragile X syndrome.

Treasurer 
Todd Befus

Secretary
Theresa Bolton 

Theresa Bolton is the parent of a son and a daughter with Fragile X syndrome. Theresa has been on the Board since 2022.

Board Member
Evalee Finlay