Board of directors
Karen Kelm MSc, BA
For over 15 years, Karen Kelm has been a significant leader in advocacy, support, and education for families and health care providers related to Fragile X syndrome in Canada. Based in Calgary, Alberta, Karen continues to build communities and networks between parents and health professionals while raising three children diagnosed with Fragile X syndrome.
Carrie became a new board member in 2021 and is the parent of a son with Fragile X syndrome.
Theresa Bolton is the parent of a son and a daughter with Fragile X syndrome. Theresa has been on the Board since 2022.