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Fragilex Canada Foundation

Board of directors

Board Member and President 
David Mitchell (Calgary, Alberta)

Based in Calgary, with pan-Canadian experience and perspectives, David is a former business and nonprofit executive who has also been a senior postsecondary education administrator and served as an elected representative in British Columbia. An award-winning writer and active mentor to emerging community leaders, he serves on a number of national and regional Boards. David Joined the Fragile X Foundation of Canada Board in 2021 and is the grandparent of a grandson with Fragile X.

 

 


Board Member and Secretary

Lori Beesley  (Toronto, Ontario)

Lori Beesley is the Coordinator of Volunteer Engagement at the Scarborough Centre for Healthy Communities and the parent of a son with Fragile X syndrome. Lori has been on the Board since 1996.

 

Board Member and Treasurer
Carrie Lakatos

Carrie became a new board member in 2021 and is the parent of a son with Fragile X syndrome.

 

Board Member 
Lawrence Spero (Gabriola Island, British Columbia)

Lawrence Spero, is a retired Professor of Pharmacology and Director of Educational Computing at the University of Toronto Faculty of Medicine. He is the parent of a 40 year old son with Fragile X syndrome who lives with a HomeShare family. Lawrence has been on the Board since 1996.

 

Board Member
Mary Kamel

Mary became a new board member in 2021 and is the parent of a son with Fragile X syndrome.

 

Board Member
Francois Buldoc  (Edmonton, Alberta)

Francois Buldoc MD, FRCPC, PhD, became a new board member in 2021. Francois is an Associate Professor Pediatric Neurology, Adjunct Associate Professor Medical Genetics at the University of Alberta.

Dr. Francois Bolduc completed his medical school in Sherbrooke, Quebec, Canada. He moved to Montreal to study pediatrics at Hôpital Ste-Justine (Université de Montreal) and then pediatric neurology at McGill University’s Montreal Children Hospital. He obtained his PhD from Cold Spring Harbor Laboratory, NY, USA in neurogenetics. Dr. Bolduc is a clinician-scientist in pediatric neuroscience and pursues his work on cognition in human using next-generation sequencing in individuals with neurodevelopmental disability (NDD) and his exploration of the mechanisms linking memory and NDD using Drosophila at the University of Alberta.

More recently, his work has also included exploration of navigation and coaching for families educators and health professionals interacting with individuals with NDD using artificial intelligence. Dr. Bolduc is passionate about bridging basic and clinical sciences to improve quality of life for individuals with NDD and their families.

 

 

Board Member 
Karen Kelm (Calgary, Alberta)

For over 15 years, Karen Kelm has been a significant leader in advocacy, support, and education for families and health care providers related to Fragile X syndrome in Canada. Based in Calgary, Alberta, Karen continues to build communities and networks between parents and health professionals while raising three children diagnosed with Fragile X syndrome. Currently, Karen is a graduate student at the University of Alberta working towards her Master of Science in Pediatrics. Her current research focuses on Fragile X syndrome, helping to improve care coordination and quality communication between health care providers and families.

 

 

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