Fragile X research is seriously underfunded.
In 1997, a group of parents and professionals decided to do something about it.
Understanding both the suffering that Fragile X syndrome can cause and, more importantly, the many reasons for optimism and hope through advances in research, they founded the Fragile X Research Foundation of Canada (FXFC).
- FXFC is a national non-profit, tax-exempt organization administered by volunteers, all of whom are parents and health professionals.
- FXFC directly funds promising research aimed at treatment. Applications for research grants and postdoctoral fellowships are accepted on an ongoing basis and reviewed annually.
- FXFC promotes awareness of Fragile X. We publish a quarterly newsletter and information materials. We also hold fundraising events and organize parent advocacy groups across Canada.