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What is Fragile X
Symptoms
The Fragile X gene
How is Fragile X inherited?
Testing for Fragile X
FXPOI
FXTAS
FXAND
Coping with Fragile X
Newly diagnosed
Letter to give your Physician when a member of your family is diaagnosed with fragile-x
Finding a genetic counsellor
Where to get help
Informing family members
Living with Fragile X
Pre-school 0 – 3 Years
School Age 4 – 12 Years
Adolescent 13 – 20 Years
Adulthood 21+ Years
What does Fragile X look like?
Helpful tips
Information from National Fragile-x Foundation (US)
Treatments
Treatment update
Medical complications
Pharmacotherapy
Therapies
Fragile X Clinic
What is a clinical trial
Research registry
Background for non-scientists
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Recreational sports
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Fragile-x Associations
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