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Finding a genetic counsellor

Families often have many questions about Fragile X syndrome and how it is passed from one generation to the next. Family members may want to know whether or not they are carriers, what it means to be a carrier and what options are available. To address these and other concerns, families can consult with a genetic counsellor.

Genetic counsellors are health care professionals who meet with family members to provide supportive counselling, answer questions, discuss ethical and psychosocial issues and provide information that may be important now as well as in the future. Genetic counselling is generally offered through genetics departments at most major hospitals. A referral from a family doctor is often, but not always, required.