In Canada, to our knowledge, approximately 136,000 people are impacted by Fragile X. The Elevate 136K campaign is a movement to recognize, empower, and uplift each of these 136,000 people, ensuring they are seen, heard, and supported.

Fragile X Canada is committed to easing the challenges for individuals, families, healthcare providers, and researchers by doing what we do best:

• Expand expertise so that every person impacted by Fragile X, whether a parent, self-advocate, healthcare provider, researcher, or community member, has the knowledge and confidence to be an expert in their role.

• Build community so no one navigating Fragile X feels alone.

• Connect and centralize knowledge so that expertise is available across Canada.

Learn more about SHAPING THE FUTURE OF FRAGILE X

Why This Matters

When we Elevate 136K, we are lifting up an entire community, one that has been underserved for too long. This campaign is about recognition, empowerment, and transformation. It’s about ensuring that every individual impacted by Fragile X has access to expertise, support, and a future filled with possibility.

We are not just funding programs; we are changing the way Fragile X is understood and supported in Canada. We are making sure that families no longer have to struggle to find informed healthcare providers, that researchers can connect with real-world experiences, and that self-advocates have a voice in shaping their own futures.

Through Elevate 136K, we are uniting the voices of 136,000 people, creating a movement that will drive real, lasting change in Fragile X care, research, and advocacy in Canada.